Thursday, March 8, 2012

The Journey Continues: A few wins, a few losses for Richard

Yesterday Richard did really well during his IGG infusion. This was his seventh one.  He didn't really get queasy or nauseated though he did do some Lamaze breathing  a few times. When I ask him what he was doing he said that he had pain pulsating down his spine and the breathing helped.  A normal level for this IGG is 700 or above and his was at 246.  They expect he might have to do this for a while.  The 17th of March will be the 10 month birthday of his bone marrow transplant.

His appointment with the bone marrow transplant doctor went well.  Most of his counts were good.  Most of them were normal or almost there. His CMV counts have been negative the last two times that he had blood work and if it is negative from yesterday's blood work he will get to go off of the Valcyte.  That is the antibiotic that messes with his counts.  He did try to negotiate some things.  He won some, he lost some. LOL  He ask if he could garden, mow, lawn work and fish.  He can go fish but not swimming, or gardening, mowing, or lawn work this summer.  There is some fungus in the soil that could kill Richard if he came in contact with it.  The doctor told him that the mortality rate is almost 100% for those with a compromised immune system.  He did negotiate on some of the medicines also.  He is able to go off of three medicines and can stay off of those according to his counts. So his medicines right now are the least he has been on since he was released from the hospital in June.

He is feeling pretty good and seems to be gaining energy!  He actually drove to Oklahoma City and back.  It felt weird!! I have gotten used to driving everywhere!  

Thank-you guys again for the prayers.  WE APPRECIATE THEM SO MUCH!!!

2 Corinthians 1:3-4

New International Version (NIV)
Praise to the God of All Comfort
 3 Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, 4 who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.

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